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Thursday, 20 February 2014

Fed up

Writing this from my desk because I'm miserable and distracted at work. So I already mentioned that I'm flaring but instead of improving with daily DSS and ACV baths it just seems to be getting worse :( it's nowhere near as bad as it was before I went into hospital but I'm just so angry and frustrated that my skin should still be this bad when I'm still on prednisalone and ciclosporin :( 
Even my face/cheeks are rashy and swollen which is something new. No amount of antihistamines will make the swelling go down so I look like I've been in a fight currently. I'm just feeling down and fed up because I haven't even started my journey properly this time around yet and I'm already sick and tired of feeling uncomfortable in my own skin 

Moan moan moan


  1. Hey Sarah,

    I'm really feeling for you. I just started on the journey of TSW and I thought that I had it reasonably easy until the last day. I'm based in London so if you need a pal to take the journey with I'm offering myself up.


  2. Hi thanks so much for your comment, it's lovely to have so much support, it's really not easy is it :( that would be great, do you have Facebook? X

  3. I do indeed I guess you are on it too. I'll try and find you. I'm wearing a tiger suit on my Facebook profile. How are you holding up? It's tough when it's on your face, I'm trying to not let it get to me but I'm not quiet as confident as I used to be! I'm just hoping that there is an end to it at some point .

    1. Hi Sarah and KC. My names Tom and i'm from Manchester! Just wanted to let you's know, there is an end to this! Ive been of steriods for 22 months now, and i'm pretty much back to normal! Ive posted my healing story on ITSAN, so have a read if you have time. You will heal!

    2. Hi Tom! Thanks so much for your reply, I think you're the first person I've spoke to that lives so close! i definitely will. thanks, sometimes it's ahrd to remember that, feels like it will be like this forever but in a few years it'll all just be in the past and we'll all have amazing skin! x

  4. Holding up ok but today is even worse than yesterday :( I'm just hoping this is a flare that will pass but I know it's got to get worse before it gets better. I've accepted you on Facebook :) it definitely helps to