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Sunday, 29 October 2017

Is it worth it?

So, checking in after a long, long break! Things are really so great right now that I forget all about TSW for long stretches of time - something I never thought would happen. I have successfully reduced down to 7.5mg of MTX  a week (down from 20mg a week) and my skin has never been better. There are parts of me I thought would never heal that are silky smooth and total non-issues now. It is magical and, to me, so worth the wait. I am by no means healed, I won't feel comfortable using that label for a long time, and certainly not before I'm finished with immunos. But I feel happy with my progress & hopeful as my 4 year anniversary approaches in Jan 2018!

Recently, a close friend asked me if using steroids was my biggest regret in life. I didn't even have to think about it. I don't regret using steroids. For starters, the decision was not really made by me, doctors have been prescribing the creams since I was 3 months old. But in a general sense, I don't regret my steroid use and subsequent TSW. TSW has taught me a lot of things about my body, about modern medicine and about patience, and those are lessons I will carry with me. I've also met some fantastic people along the way who have supported me, people who are so generous and kind. I feel lucky to have met them! As if that wasn't enough, my skin has never been better and I can finally feel that there is an end in sight. So no, I have no regrets. And YES! It is absolutely worth it :)

As previously mentioned I am a bit rubbish at checking my comments here, so if you want to get in touch just drop me an email at sarahecg@gmail.com

S x

Thursday, 16 February 2017

Goodbye Korea, Hello Vietnam! - an update

Just a quick note to say that I'm in Vietnam and doing really well on methotrexate. I successfully tapered off cyclosporine and I hit my 3 year TSW anniversary not so long ago!

Healing is definitely happening, and I just started reducing my methotrexate so I will try to update if/when things change.

The main point of this post was to put my email address here, in case anyone wants to contact me. I do get comments on old blog posts and I'm terrible at checking for them. I hate to miss messages as keeping in contact with TSW bloggers really got me through in the beginning.

So, if you want to contact me please drop me an email. I'm always happy to chat.

My email address is sarahecg@gmail.com

Happy healing,

S x