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Monday, 29 February 2016

Methotrexate week 3 and Thailand pictures

I have been taking Methotrexate for just over 3 weeks now and wanted to write a little about my experience so far!

I also just got back from a great trip to Bangkok in Thailand so thought I could share my pics here too :)

First off..methotrexate! So when I last posted I wrote about my ridiculously complicated drug schedule, it's getting easier to remember as time goes on but its still unbelievably complicated and I can't wait until I can transition to taking my immunos once a week once the MTX kicks in!
I took my first dose of methotrexate on Friday 5th Feb, two 2.5mg pills in the AM and two 2.5mg in the PM to make a total of 10mg a week. The morning dose went fine, and I took 150mg of cyclo in the afternoon as directed. When I took my 8pm dose of 5mg MTX thats when things started to get a bit...weird.
Firstly I started to feel SUPER dizzy and just...spaced out.. is the only way I can really describe it. I've taken psychedelics before and this genuinely felt like a toned down version of this. I felt SUPER weird and sick. The spaceyness subsided by Saturday morning and I was left with just feeling super super sick. I also had a horrible chemically taste in my mouth. By Sunday afternoon it had all subsided.
The next week was much better, I didnt get any of the crazy spaciness, nor the sickness, just a little bit of the chemical taste. By week 3, I had no weird symptoms at all, so I'm happy with that. I think the weirdness was just my body adjusting to a new drug in its system.
I'm really hoping things continue to go well so that I can wean myself off the cyclo and onto the MTX fully.

Anyway here are some pics of me enjoying the crazy Bangkok heat! It was hot and sweaty and sticky and my skin fought with me a little but ultimately didn't give me too much trouble.

S x


  1. I'm very jealous of your travel adventures. It's rainy here! Big hugs.x

    1. Thanks for the comment Louise! It's been super fun and my skin hasn't held me back too much thanks to immunos. Hope you are well xx

  2. Hi Sarah,
    Do you have any update on how the LDN worked for you? Also, MTX for skin sounds interesting. Did the derm talk about side effects, if any?
    Wishing you all the best with your new treatment schedule!

    1. Hi Manpreet,
      It was a bit of a complicated one with the LDN...I didn't give it enough time to work and I had been at a reduced cyclo dose for a long time, my skin just became unbearable. So I upped my cyclo dose and just kinda stopped taking the LDN. Probably dumb I know :( If you have the willpower/determination I absolutely suggest LDN, but I was just at the end of my rope and wanted back on the cyclo.

      Not really, as I think they are quite similar to the side effects of cyclo and I dont really suffer any side effects from that. I think most of the side effects from heavy immunos such as MTX and cyclo come in the very early days of taking them and they subside once your body adjusts. That's just my (completely unprofessional) opinion!! haha.

      Thanks so much, hope you are doing well xx