So first of all, I'm aware of how neglectful I've been with this blog, I hope I can be forgiven...
I suppose it's because things are really going okay for me at the minute, it's nice not to have to dwell on my skin all the time.
But, I did want to post about something that's been on my mind for a couple of weeks.
Being a member of ITSAN and also a few of the facebook groups, I've heard a lot about people's stories, and most people have (sadly) been using steroids for a long long time, most for decades. I've also been using steroids for decades - since I was a baby. But, something I've been thinking about that I don't think is discussed much...when do you think you became addicted?
I suppose for some this might not be easy to figure out but I was thinking the other day that I spent a Summer in the US in 2012 and didn't take any of my topical steroid creams with me and didn't have too much problem with my skin. I was still using emollient but no steroids at all.
Then, when I got back I moved house and got a new GP, who gave me a repeat prescription for fucibet and eumovate.. Then I remember my skin was great in Summer 2013, and although I was using steroids daily I was applying quite sparingly. My problems really started in around October 2013 when I was using steroids twice daily and noticing no improvement, skin was CONSTANTLY dry and sore, and I would cry when I showered because the water hurt my skin. I kept thinking that this didn't feel like normal eczema, I remember thinking I was allergic to my emollients and trying lots of different types to get my skin to heal but to no avail. I was prescribed betnovate in November 2013 and used for a month before finding ITSAN and that's when my TSW journey began.
So, by this calculation, maybe I have only been addicted to topical steroids for max. 2 years? It's hard to say for sure but I only really noticed a change in my skin in October..maybe I have only been addicted for a few months? This would make sense to me because although my initial withdrawal was painful, I've noticed a significant improvement quite quickly. Obviously I am still on ciclo and so I'm hesitant to make any assumptions, it could be when I reduce that I notice a massive decline and all my calculations are wrong! I spoke about this with one of my tsw friends (Hi Jo!) who does not use immunos. She thinks she has probably been addicted for around 2 years too and is now only experiencing mini-flares,her skin is much better than when she was using steroids.
Anyway I have a derm appointment on the 2nd of July and I'm going to bring up reducing the ciclo. I think I'll have a hard time convincing him because he wants to see my skin super-clear before he thinks that the ciclo is working for me because, obviously, he doesn't believe in TSW! But hopefuly I can convince him and work my way towards becoming properly drug-free!
How is everyone doing? I'm 4 months off TS now, counting down the days 'til 6 months TS free! x