Day 5 (Is that all?!)

Hi Guys,
Sorry about the lack of updates but I've been really suffering these past 4 days :(
My skin is like leather, or scales, or sandpaper, I'm not sure really, something really really red and really really flaky and really really dry and really really ANNOYING. To make things so much worse I've just started a new job and I am sitting in the training room itching like I've got a load of fire ants shoved in my clothes, constantly wriggling and itching and scratching. Luckily I've made friends with a lovely group of girls who are really sympathetic, even if they don't totally understand my TSW (it's pretty hard to explain isn't it!)
Anyway I'm just plodding along really, nothing new to report apart from the fact that I now wake up pretty much soaking wet every morning since I FEEL as though I'm freezing but in actuality I'm sweating and oozing all over the place. Great. I've got to be the most attractive person on this planet.

I've joined some forums and things so that I can get a bit of support. It would be lovely to be able to skype or speak over the phone with someone who is going through TSW...if anyone fancies this please get in touch. I've been updating my mum daily and crying down the phone to her (ha) but she doesn't really understand and she worries, with not living in the same city as me. So I'm on the hunt for a (preferably UK based) fellow TSW friend. It could be you....!

I'm going to post some photos from Day 2 in a second, I meant to do it on the actual day but really I've just not been feeling up to it. I've got a TINY bit of positive energy in me today so that's how I've found the time to write this post.

S x

Day 1, Shopping...and Burning

So I suppose this is officially day 1 of my TSW journey. My hydrocortisone, eumovate, fucibet and betnovate (yes I was on all those steroids simultaneously) are all in the bin out of my reach and instead i decided to go into town for a bit of retail therapy and to pick up some helpful things for my healing!

Even though it's only been 24 hours since I last used steroids on my skin, it is already tight, red and giving off heat like a radiator! Seriously, I live in a big draughty house and I feel like I could quite easily heat it just by being sat in my bed. I'm so itchy and raw and all I want to do is sit in bed alone but I have friends coming over tomorrow so I'm determined to keep my spirits up for that.

Anyway, here are the things I bought today.

I decided I wanted to buy some calamine lotion to soothe the burning of my steroid-free skin so I headed into Boots but was told they only had a calamine and glycerin cream. I checked the ingredients and there's nothing sinister in there so I was happy to purchase it, we'll see how I get on!
Then I popped into a lovely vegan & vegetarian cafe for lunch where a close friend of mine works and after spoiling me with lots of dairy and gluten free treats she recommended that I also buy some rosehip oil as this has worked wonders on her skin in the past. So, willing to try anything, that's what I've done!

I also bought some ridiculously inappropriate shoes to compensate for my ridiculously inappropriate skin and a lovely white t shirt which I plan to wear when there's no longer the risk of me bleeding/flaking all over it (lovely I know!)

Anyway I'm home now, covered in calamine and rosehip oil and burning up like a radiator and I'm very conscious that this is only the start...
I may well just hibernate!

I'm planning on uploading some photos tomorrow for my "before" pictures, so there's something to look forward to ;)

S x

Wilding

So I'm still awake and I just wanted to write a post about someone who has been really helpful to me in my already long journey for healthy skin.

I was up late googling eczema (as per usual, seriously, my browser history is shameful) and I came across this video:

I watched the video and related so much to Wilding (the guy in the video). Like him, I dream of healthy skin and find myself staring at people's smooth skin in envy (I know, I must look so odd). Anyway, I realised that Wilding wasn't actually going to reveal his skin secrets in this video and just assumed that this was another one of those things I would have to part with money for just to read a few pages in an E-book containing information I already knew. But, I stuck it out and followed his instructions and found out that it is totally free to read his E-book online once you sign up to his mailing list.

Even though I am now convinced that what I am suffering with is Red Skin Syndrome, I do still have flare ups of eczema too and Wilding's book has helped me to open my eyes and finally make the step to change my diet. Not only that, but his regular emails are so inspiring and supportive, I really wanted to give him a mention on my (admittedly very new) blog so that others can put themselves in touch with him and benefit from this guy. He's an inspiration!

S x

Introduction

Welcome to The Thick Skin, where I document my journey through Topical Steroid Withdrawal in the hope for clear skin! Please read my story and visit ITSAN.org for more information about TSW.

MY STORY
Hi! My name is Sarah.

I am an ex-pat from the UK living in South Korea (just to make things more complicated for myself obviously ;) )

I have suffered from chronic eczema since I was a baby and I have never really found any relief. By the age of 22, I have tried every single kind of eczema remedy you can imagine. ''Have you tried..." YES. YES I BLOODY WELL HAVE. 

I had also used topical steroids ever since I could remember but my skin just kept getting worse. Doctors would prescribe me stronger and stronger creams but nothing would work. I felt like my skin was on fire, I would cry whenever I got out of the shower because I felt like I had severe sunburn all over my body. 

On 10th January 2014, after some frantic googling, I found ITSAN

After a quick browse through the ITSAN website I became educated about something called Red Skin Syndrome, a condition where the skin becomes addicted to topical steroids. The result of red skin syndrome is that the steroids used to improve eczema actually end up making it far worse. This is explained a lot better on other websites, such as the immensely supportive and useful ITSAN website. 

Since finding the ITSAN website, I quit all topical steroids. This blog follows my journey towards healing.

My intention for thsi blog is not only to vent  my frustrations (and believe me there are a lot) but also to spread awareness. If you have used topical steroids for a long period of time and your skin is worsening, there is a good chance you are addicted. PLEASE check out the above links and educate yourself, this journey has been absolute hell but I would not take it back for anything in the world.

It is not easy but while topical steroids might have thinned my skin, my metaphorical one really is thick, most eczema sufferers will be the same. We're used to funny looks in the street and well-meaning strangers suggesting obvious remedies and we're used to being treated differently because of our skin, almost as if we're contagious. So, I know I've got the strength and willpower to give up my topical steroids. And so do you!